Patient Education Manager, NF1 PN, West

About this role

This is what you will do:  

The   NF1 PN   Patient Education Manager s   (PEM s )   are   an empathetic and trusted educational resource for NF1 patients and families . They are   responsible for engaging with the   local   NF1 patient community via 1:1 meetings; conducting unbranded and branded patient education   at scale through   programs; and (in close collaboration with Alexion’s Patient Advocacy team) partnering with local and regional NF1 advocacy groups to   further   raise awareness of NF1 burden, NF1 disease progression, and NF1 PN treatment.  

In addition to   these responsibilities,   PEMs also   refer   patients and caregivers   to   Case Managers   for case management support when starting on Alexion therapy   and   connect   the NF1 community , as appropriate,   to local advocacy networks and approved resources to best support   patients and their families through   the   treatment journey.   

You will   be responsible for :  

• Developing,   in close partnership wit h   Alexion Patie nt Advocacy and   NF1 PN brand marketing,   a   regional   patient engagement   plan   that   strategically   supports commercial priorities      

• Coordinat ing   frequently   with   key cross functional partners   to   execute local patient outreach compliantly and effectively   (e.g.: Compliance, Legal, Marketing, Market Access, Medical, P atient   Advocacy, Patient Services, etc.)  

• Educating   patient s and   caregivers   via 1:1   meetings, including face-to-face interactions,   about   NF1 disease state,   NF1 PN   treatment,   and   Alexion’s patient support programs  

• When possible, c onducting impactful   in-person   or   virtual   educational events on behalf of Alexion   to deliver disease and product information at scale  

• Building a robust rare disease network of NF1 PN advocates via active participation in local advocacy events   to   identify   educational needs,   raise disease awareness , and   promote patient empowerment  

• D elivering on data driven p erformance   object ives   and effectively   tracking and communicating   year-to-date   progress to   cross functional partners and   Alexion leadership  

You will need to have:  

• Minimum of 4 years business experience in the healthcare   industry  

• Experience engaging   with   patients and caregivers with rare/chronic conditions  

• Empathy   for others with proven ability to listen well , connect meaningfully,   and present complex information in a clear and engaging manner during 1:1   meetings  

• High initiative, solid work ethic,   and   consistent   accountability  

• A bility to adapt   quickly and commitment to react positively   to   frequent change   in a high-energy ,   fast paced environment  

• Excellent presentation skills to diverse stakeholders in varied settings that will include groups   of  150 + people    

• Strong organizational capabilities that will   facilitate   strategic and efficient   territory   management   over   a large   geography  

• Ability to travel 60-80% of   time , including evenings and weekends. Willingness to attend   in-person   impromptu trainings, educational programs, and business   meetings   as necessary .   Potential territory   to cover includes the following   states:   Alaska, Arizona, California, Hawaii, Idaho, Iowa, Minnesota, Montana, Nebraska, Nevada, New Mexico, North   Dakota,Oregon , South Dakota, Utah, Washington, Wyoming  

• Valid driver's license and clean driving record  

• BA/BS   d egree is preferred ,   advanced degree a plus  

We would   prefer   for   you to have:  

• At least   three   years   field-based experience in account management, patient education , or sales  

• Experience   assisting   patients/caregivers   

• Background in a dvocacy,   nursing, rare disease support, or social work  

• Understanding of community engagement groups and non-profit organizations   

• Understanding of   managed care and self-administered products   

• F amiliarity   with relevant legal and regulatory components of the pharmaceutical and biotech industr ies;   rare disease specific knowledge of these elements is   a plus  

• Knowledge of   Oncologic, Neurologic, or Rare Disease   conditions    

• Bilingual, Fluent in reading and speaking Spanish  

The annual base pay for this position ranges from $135,332 to $202,998. Hourly and salaried non-exempt employees will also be paid overtime pay when working qualifying overtime hours. Base pay offered may vary depending on multiple individualized factors, including market location, job-related knowledge, skills, and experience.  In addition, our positions offer a short-term incentive bonus opportunity; eligibility to participate in our equity-based long-term incentive program (salaried roles), to receive a retirement contribution (hourly roles), and commission payment eligibility (sales roles). Benefits offered included a qualified retirement program [401(k) plan]; paid vacation and holidays; paid leaves; and, health benefits including medical, prescription drug, dental, and vision coverage in accordance with the terms and conditions of the applicable plans. Additional details of participation in these benefit plans will be provided if an employee receives an offer of employment. If hired, employee will be in an “at-will position” and the Company reserves the right to modify base pay (as well as any other discretionary payment or compensation program) at any time, including for reasons related to individual performance, Company or individual department/team performance, and market factors.

Date Posted 18-Aug-2026 Closing Date 24-Aug-2026 Our mission is to build an inclusive environment where equal employment opportunities are available to all applicants and employees. In furtherance of that mission, we welcome and consider applications from all qualified candidates, regardless of their protected characteristics. If you have a disability or special need that requires accommodation

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